Focus On Lyme was started
to improve diagnostics, treatment, prevention and advocacy for patients suffering from Lyme and associated tick-borne diseases.
Focus On Lyme will be hosting invite-only scientific conferences aimed at addressing specific needs within Lyme. The inaugural event in February 2016 will focus on diagnostics and treatment. Subsequent events will be held for advocacy and prevention. Each topic is broken out for manageability and effectiveness. The goal is to create working groups and collaborations in each area of focus. Each conference will be followed by a fund raiser dinner to fund the needs identified in the scientific conferences.
Focus On Lyme has partnered with TGen scientists Paul Keim, Ph.D. and David Engelthaler, Ph.D., to create a next generation DNA sequencing test. Paul and his team have world renowned success coupled with state of the art technology to create an assay more accurate and specific with the goal of changing Lyme diagnostics. This test is expected to be revealed at our February 2016 event.
Many stories of Lyme disease are similar with misdiagnosis and lack of proper treatment options while debilitating symptoms worsen. Many physicians simply do not believe in a Lyme diagnosis and patients are forced to pay out-of-pocket for treatments and medication, not knowing if they are helping or hurting. Even after patients are feeling better, they are unsure if they are healed or in remission.
The typical Lyme patient cannot afford to travel cross country to seek out care from a Lyme specialist. Nor the out-of-pocket costs associated with IV antibiotics and cash pay office visits. Many patients are so ill and tired they cannot advocate for themselves in an insurance system that does not recognize their condition.
Focus On Lyme was created to help all Lyme patients by making effective change within the diagnosis and management of this disease so patients maintain a quality of life.
Focus On Lyme is taking a systematic approach to Lyme disease and attacking each issue one step at a time.
Lyme is the number one reported infectious disease to the CDC with over 300,000 reported cases last year. The diagnostic tests that exist today are flawed, meaning the actual number of Lyme cases is much higher. Antibody based-only test is 30-50% accurate. PCR test is only 62% accurate. This is not much better than a coin toss and we can do better.